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BasedStaff2d ago

Community AnchorEffexor

A very interesting idea. I think it would take some planning but if done right it could be amazing.

Creator of Taper Community, here to help you.

anne noni moss2d ago

WelcomerPaxil · holding

thank you for offering your thoughts! "done right" is the rub! LOL. That's why I'm soliciting thoughts and ideas. If more than one person contributes, I think that might be more "successful" than just one person . The whole "higher power" idea seems to depend on it being a "we" thing. "We" shall see! LOL

atypical in presentation of side effects, super sensitive to small doses and general delayed responder. never took a psych med that didn't' make me sick immediately with infections and restless legs. have never been able to tolerate being on them, but have never had support to get off so I've been bouncing back and forth. i don't like capital letters. sorry.

Paxil — 1 mg — 2 yrs — holding until Oct. 7 doc appt.
Seroquel — 50 — planning taper |
trileptal -75 planning taper
prasozin 1 mg planning taper

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Catina2d ago

Community AnchorEffexor

Anything is worth considering! I personally get anxiety with things that are in-person, but I'm sure some folks would love to explore this idea.

Venlafaxine (tapering) - Current dose 17.92 mg
Trazodone - 50 mg
Levothyroxine - 25 mcg

“Your brain and body know how to heal. Trust the process and keep going.”

Please Note: I am not a healthcare professional. Any advice given is based on personal experience and that of others in the lay withdrawal community.

anne noni moss2d ago

WelcomerPaxil · holding

Thanks @Catina. Yes, in -person is hard for me, too. While I enjoyed that N.A. meeting last night, today, I feel I was hit by a truck. Totally drained my nervous system. But someone, somehow founded "Chronic Pain Anonymous" despite being very ill. So...who knows?????

atypical in presentation of side effects, super sensitive to small doses and general delayed responder. never took a psych med that didn't' make me sick immediately with infections and restless legs. have never been able to tolerate being on them, but have never had support to get off so I've been bouncing back and forth. i don't like capital letters. sorry.

Paxil — 1 mg — 2 yrs — holding until Oct. 7 doc appt.
Seroquel — 50 — planning taper |
trileptal -75 planning taper
prasozin 1 mg planning taper

anne noni moss2d ago

WelcomerPaxil · holding

Proposed steps: Step 1: Admitted we were powerless over the effects of psychiatric drugs which have made our lives unmanageable. Step 2: Came to believe that a power greater than ourselves could and would show us a way back to health. Step 3: Made a decision to turn our will and our lives over to the CARE of God, as we understood God. To be continued. The problem with all the other programs, N.A. A.A. Pills Anonymous, etc. is they treat the problem as a somewhat deliberate addiction. We iatrogenic addicts have a completely different experience, even though some of us may have abused other substances. We were given psych drugs to "break" that other addiction! AGGGGGHHHHHHHHH !!!!!! any thoughts?

atypical in presentation of side effects, super sensitive to small doses and general delayed responder. never took a psych med that didn't' make me sick immediately with infections and restless legs. have never been able to tolerate being on them, but have never had support to get off so I've been bouncing back and forth. i don't like capital letters. sorry.

Paxil — 1 mg — 2 yrs — holding until Oct. 7 doc appt.
Seroquel — 50 — planning taper |
trileptal -75 planning taper
prasozin 1 mg planning taper

P

Polly's Farm1d ago

Trusted VoiceTrintellix · researching

Hi mraz, it's an exciting idea. I got the impression though that 12 step groups would not be supportive of tapering, I'm not sure they'd accept that with these drugs it's safer to stay on them longer while gradually reducing than to stop suddenly and go through withdrawal... but I could be wrong.

Trintellix — 15mg — 4 years, 9 months — researching taper | Risperdal — 0.35mg — 4 years, 9 months — actively tapering | Depakine — 1000mg — 12 years — supporting others | with clinician

anne noni moss1d ago

WelcomerPaxil · holding

"got the impression though that 12 step groups would not be supportive of tapering, I'm not sure they'd accept that with these drug" — @Polly's Farm

Hi Polly...you are right...there's nothing out there for us...be we can CREATE ONE that suits our needs. I mean it's practically already created thanks to all the work done on this form, and Dr. Horowitz, etc. The work, as I see it, it creating literature that serves our needs. It seems to me, there are two aspects to our recovery: 1. managing our physiological symptoms 2. supporting one another with suffering using the steps that have helped so many others our tools and focus would be quite different from A.A. etc. But why re-invent the ENTIRE wheel when the structure of that anonymous, open, not telling others what to do, but walking along side them has worked so well??? That's me thinking because the steps have helped me so much, but I don't really FIT in anywhere. I cannot sponsor a person who is experiencing temptation to buy heroin and go on a bender. I just can't relate. But I CAN walk along side someone who has experienced: being prescribed a strong med for normal life stressors being falsely motivated to believe they were "seriously mentally ill" believing they are seriously mentally ill because they drugs make whatever symptoms they had WORSE losing sometimes DECADES of life due to an avoidable illness cause by drugs, etc. I also think it might be important to address trauma in such a program. We life in a society that is DEEPLY traumatized by dysfunctional families, trafficking, assault, etc. Doctors treat all of it with psychiatric meds because the natural, human, support systems needed to get one through such horrors have been deconstructed during my lifetime. My family failed me so I turned to the church. The church failed me so I turned to doctors. You know the rest of the story. .. Truly hope people chime in. My dream, I guess, is to help create some of the support we so desperately need beyond a computer screen, helpful as this is!

atypical in presentation of side effects, super sensitive to small doses and general delayed responder. never took a psych med that didn't' make me sick immediately with infections and restless legs. have never been able to tolerate being on them, but have never had support to get off so I've been bouncing back and forth. i don't like capital letters. sorry.

Paxil — 1 mg — 2 yrs — holding until Oct. 7 doc appt.
Seroquel — 50 — planning taper |
trileptal -75 planning taper
prasozin 1 mg planning taper

anne noni moss18h ago

WelcomerPaxil · holding

From "Inner Compass" Why this step is important Before starting your taper, stepping back from your day-to-day life to assess the errands, tasks, and responsibilities that you have on your plate will help you start to proactively think through a plan for how you might “lighten your load” should things get tough on the withdrawal road ahead. Image removed. Getting oriented While daily responsibilities such as running errands, cooking, cleaning, working, driving, attending school, and taking care of others are to varying degrees a part of all of our lives, the journey off psychiatric drugs can, for some people, make these otherwise “normal” activities feel more difficult or even unmanageable for temporary periods of time. By carefully preparing for your withdrawal and tapering off in a slow, responsible fashion, you minimize the odds that you’ll come up against these kinds of challenges in your day-to-day life. But it can still be helpful to pause in advance of starting your taper to take a look at what you’ve got going on, consider possible difficulties ahead, think through potential solutions, and take proactive measures to lay the groundwork for those solutions if they become necessary down the road. The 'Inventory Exercise' in this step will help you take stock of your situation and figure out ways to “lighten your load” by reducing the likelihood of unnecessary stress. https://www.theinnercompass.org/prepare/step-4-managing-day-day-responsibilities-and-tasks

atypical in presentation of side effects, super sensitive to small doses and general delayed responder. never took a psych med that didn't' make me sick immediately with infections and restless legs. have never been able to tolerate being on them, but have never had support to get off so I've been bouncing back and forth. i don't like capital letters. sorry.

Paxil — 1 mg — 2 yrs — holding until Oct. 7 doc appt.
Seroquel — 50 — planning taper |
trileptal -75 planning taper
prasozin 1 mg planning taper

anne noni moss18h ago

WelcomerPaxil · holding

Thinking about "Step 4 and 5"...its tricky for me. While an "inventory" of our lives can be helpful for overall emotional health, in the middle of a taper, it could be overwhelming. While reading other tapering websites, I FELT overwhelmed by all their steps and suggestions on how to "get ready" for a taper. I wonder...how many of us find a supportive site like this one BEFORE we get into trouble with dosing these meds??? LOL So, I want to create a "working" 4th step that is as simple as possible and adaptable for those who have the mental clarity to make changes in their lives in order to support a successful taper. So, here's a DRAFT: step 4: We took a gentle and simple inventory of lives. step 5 We relaxed and asked for support to make changes that would make our taper more effective. Any 12 steppers out there with thoughts?

atypical in presentation of side effects, super sensitive to small doses and general delayed responder. never took a psych med that didn't' make me sick immediately with infections and restless legs. have never been able to tolerate being on them, but have never had support to get off so I've been bouncing back and forth. i don't like capital letters. sorry.

Paxil — 1 mg — 2 yrs — holding until Oct. 7 doc appt.
Seroquel — 50 — planning taper |
trileptal -75 planning taper
prasozin 1 mg planning taper

tossing crumbs on the water: starting a 12 step group for us

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