Insight on psychosis and Musical Ear Syndrome

October 31, 2026

I have just come across a condition called Musical Ear Syndrome This is an experience that deaf people can come across which means that it seems they can hear music outside of their body. Which can seem Annoying and Startling when not understood, and is described by doctors as being like tinnitus. They don't consider it to be a Mental Illness. They say that the brain fills in the gaps to make up for silence. But, Loneliness Social isolation Stress Fatigue Anxiety Are triggers Just like a so called 'psychosis' can be triggered Which triggers my 'stress related psychosis' and makes it more noticeable, I know this They say that understanding this helps. Yes it does, because now I make sure I know how to cope with isolation and stress. Therefore I'm perfectly fine on 100mg serequel because I can stop it in it's tracks with the coping strategies I've learnt And I also now have the understanding that it is normal to find it annoying and startling when not understood. Why isn't this explained at a doctor's appointment when it starts? So, this proves that there is an understanding in the medical profession that the brain can make up sounds when a person is facing difficulties and needs help with their situation. It's just that a deaf person has something physically wrong with their ears, so they put it down to that and don't put them on antipsychotics They feel sorry for their Physical disability and give them coping strategies, right from the start This is very interesting to me and a missing piece of the puzzle 🧩

Seroquel — 400+ — 22 years —down to 100 in 6 months, 100 is taking a lot of time to get used to so resting on 100 for as long as it takes. holding without clinician. A journey of 1000 miles starts with a single step 👣🌀

2 Replies

anne noni moss3d ago

LighthousePaxil · holding

"o, this proves that there is an understanding in the medical profession that the brain can make up sounds when a person is facing difficulties and needs help with their situation. It's just that a deaf person has something physically wrong with their ears, so they put it dow..." — @Horizon

so true! And I'm happy to read your insights. I think we are both so tired of the medical model for inner pain. It is changing! Keep learning! I will too.

atypical in presentation of side effects, super sensitive to small doses and general delayed responder. never took a psych med that didn't' make me sick immediately with infections and restless legs. have never been able to tolerate being on them, but have never had support to get off so I've been bouncing back and forth. i don't like capital letters. sorry.

Paxil — 1 mg — 2 yrs — holding until Oct. 7 doc appt.
Seroquel — 50 — planning taper |
trileptal -75 planning taper
prasozin 1 mg planning taper

started my psych med saga in 2001 and wish I never had. I had some difficulties with sleep and anxiety, but NOTHING like what was in store for me after trying every med out there. My last treatment center promised to "get me totally off" in 2022 but it was a lie. They just switched drugs and added more and more in a desperate attempt to help me "stabilize," so they could call me a "success story" once insurance stopped paying. I agree with those who state that this industry needs to change. AND I'm working on not being resentful about my suffering because it doesn't help anyone.

been on an off cocktails since 2001. Most recent mixture, prescribed in 2024: 20 mg Paxil, 150 Trileptal, 50 Seroquel, 2 mg prasozin, (for PTSD/nightmares.)

immediately went to 1 mg prasozin, and after 3 months cut to 10 mg paxil. No felt effects. Then went to 5 about 3 months later, (though I didnt' keep track so I'm rusty.) No felt effects. So, I've roughly been on 5 mg for a year and a half.

Side effects always force to to start tapering RIGHT AWAY.

I didn't start keeping track of my Paxil taper until this year. I went from 3mg to 1 in 10 months, using a liquid Maudsley-ish slow taper. Again, no felt effects until now.

October 2026...sleeping less and feeling more sedated during the day. Having trouble managing my social life without getting over-stimulated. Must set boundaries according to my body and not my heart.

Holding 1 mg paxil until blood work done and evaluated, and to see if build a social life that doesn't make me lose sleep. Sounds silly as I type it, but actually, nothing is "silly" on this ride! Everything is WILD!!!! LOL

Keeping all other meds the same. Sorry so long.

Horizon3d ago

NavigatorSeroquel · holding

@anne noni moss je t'apprécie 🫂

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