Hi, I'm Sea Jules

Sea Jules, welcome. A year of living moment by moment after a 3 week taper and nobody acknowledging it, that is a heavy weight. The fact that you pieced together what the opioid was doing on your own says a lot about your instincts. You have been through the wringer and you are still here reaching out, that counts for something. I would encourage you to log your days under My Taper in the sidebar, even the brutal ones. After a year you might not see a pattern yet, but tracking what you are going through now could give you a clearer picture of the waves and windows. And when you have a spare moment, jump in on other folks' posts. Your story, the part about the opioids masking it and the doctors missing it, that is experience someone else here is desperate to hear. They need to know they are not crazy either.

Hi @Sea Jules, a very warm welcome to you! You've endured some very challenging and difficult moments in your life, but I can tell that you're a survivor. What symptoms are you dealing with? Just like with any injury, a drug injury needs time to recover. How are you trying to cope? What does a typical day look like for you? Do you feel supported by family and friends or do you feel misunderstood? We have some information here that I'll share with you that I hope will help. Please know you're not alone. We understand what these drugs are capable of. We also have seen people heal who have been polydrugged and injured. Healing happens, it just takes longer than we'd like. You've already survived so many difficult days and are still here fighting and hoping. https://taper.community/resources/blog/protracted-withdrawal-syndrome-explained https://taper.community/thread/26b781b7-f7f2-480c-8bc7-b893e9b6f802 https://taper.community/thread/57d0fb51-6e6e-4517-9d3d-1dd2f2e3880c https://taper.community/thread/ec72f5e5-39fe-4f0e-b3c9-083b3e99d1c3 https://taper.community/thread/9fb2eccd-87d1-4e28-99fb-bd3764817f5e Weathering the Darkest Nights: https://taper.community/thread/1c8811c9-e7c0-47e7-9ad0-504629f868a1 Big Hugs, Catina 💜

Since I initiated this, I have been enduring end over end adrenaline dumps because of my noise sensitivity and do not have the capacity to think so I can only say thank you for being here and if I can get on the other side of this latest assault, I want nothing more than to somehow manage to tell my story, read what you graciously sent me and if at all possible, help others in any way I can. There are so many of us. I once thought I was the only person in the world this was happening to. I so appreciate you all being here.

"if I can get on the other side of this latest assault" — @Sea Jules

I know you will make it. You've come this far and survived, which shows you have great strength and fortitude. 🙏🏻

"I want nothing more than to somehow manage to tell my story, read what you graciously sent me and if at all possible, help others in any way I can. There are so many of us. I once thought I was the only person in the world this was happening to. I so appreciate you all being h..." — @Sea Jules

We will gladly hear your story and support you 100%. You're not alone by any means. We have members here from all over the world, and we all share the same struggles. And one day you'll be able to pay it forward and help others. You have to survive so you can tell others you made it through. Your example is priceless! 🩵

"Since I initiated this, I have been enduring end over end adrenaline dumps because of my noise sensitivity and do not have the capacity to think so I can only say thank you for being here and if I can get on the other side of this latest assault," — @Sea Jules

You will make it. I was prescribed opioids one year ago, and they also added Klonopin, I developed noise sensitivity. I hear you.

"You will make it.

I was prescribed opioids one year ago, and they also added Klonopin, I developed noise sensitivity. I hear you. 1"

— @Azul

I don't know how this works. I accidently brought up quote and reply so I'm trying this. Did somebody believe you when you told them what was happening and they prescribed an opioid? You are the first person I have come across that talks about an opioid in this entire nightmare. So much of my anger comes from the fact that I accidently stumbled on that and I never had a chance to find out if that one to two opioids every 5 to 7 days that was keeping my CNS from getting blown up from the too fast taper could have saved me all this suffering. The doctors won't even address the taper and said they wouldn't give it out for an 'unknown' issue yet called it MDD and I was high risk of dependence. My blood pressure was at medical emergency and they said I had MDD and told me to come back in two months but more than willing to give me any other drug that would have made things worse. You are also the first person that has mentioned noise sensitivity. I still can't stop asking people if they hear something I hear and then wonder why I do because the answer from them is always no. I understand my dog way better than I ever did. We both hid in the closet during the fireworks. Bass is the worst. I've tried headphones, music, noise reducing devices, white noise, brown noise, pink noise (I never knew there was so many colors of noises) nothing drowns it out. Retreating to a mattress and pillows staying off the floor and covering up with a weighted blanket with my feet flat on the mattress seems to be the only way to endure it.

"Did somebody believe you when you told them what was happening and they prescribed an opioid? Y" — @Sea Jules

No, they didn't believe me, even some relatives. I was prescribed opioid and a benzodiazepine at the same time. Nobody told me that it was a dangerous combination. I had to do my own research while shaking with akathisia and hyperacusis (noise sensitivity). I CTed the benzo at the lowest dose but it turns out it was not the lowest 0,125 mg. So noises became terror, just know that it chemical terror, you are not going crazy or anythings like that I do believe you. It's the result of a sensitized nervous system, antidepressants, benzos target receptors involved with balance with brain sensory processing. I had to reinstate the benzo to survive because I felt I was slowly dying. I'm tapering slowly. Noise sensitivity persist but not in such severe level. I use earplugs when I leave home. Opioids, benzos and steroids are a dangerous cocktail. But we survived to tell. We will make it.