I am actively tapering from topamax and this all started because I missed a couple days and went in to extreme withdrawal. I took the meds after the 4th day because I thought that would immediately clear up the withdrawal but it made it worse to the point that by the 3rd day it n 100mg I had a seizure. The hospital tried to put me on an every 3 day 25mg taper and that put me in the worst withdrawal of my life getting to 50mg for a week. I am now back up to 75mg with propranolol to help with the withdrawal symptoms. My neurologist wants me to taper 25mg every two weeks but I am terrified to go back in to such extreme withdrawal again. I’m afraid even going down by 25mg monthly will be hard especially with this medication already giving me a seizure and I cannot miss any more work. Are there any suggestions because my neurologist doesn’t seem to believe just how bad my withdrawal was at 50mg.
Topamax — 75 — 2 years 6 months — actively tapering | without clinician
I’m learning the hard way not to trust any medical person when it comes to tapering. Keep coming here and asking for a clinician who knows. I’m learning to advocate for myself.
60 mg — 2 yr — holding | without clinician
Join the conversation
Sign in to share your experience and connect with others.
TaperCommunity