TaperCommunity
"Following medical advice to simply quit the medication, a catastrophic cold-turkey withdrawal ensued, leading to thirty days of total insomnia and a state of constant, extreme DPDR." — @DeNyHi DeNy, and welcome to the community. I'm sorry you've gone through much, and continue to do so. Quitting cold turkey, as we already know, is not sound medical advice. Let us know how we can help, and please use the resource section, as it's full of useful information. One bead at a time ⚪
"Hello catina glad to find you here, it might take some time for me to adjust." — @DeNySo glad we can be here together. Any new site takes time to adjust to, so just take things slowly. We're here for you every step of the way.
"thank you so much for your ai suggestion otherwise i would not have been able to keep track of time and present it as a story" — @DeNyI'm so glad it helped! AI can be a powerful tool to utilize.
"think it was a prescription one not OTC if memory serves, i am not really aware of the ingredients in it and the local brand. i took first day as per the cap didnt feel anything slept second day after taking i slept and woke up with very intense DPDR ( it did make me sleepy) ." — @DeNyThanks for the clarification. I'm wondering if it contained codeine or not. At any rate, you obviously had a reaction to an ingredient in it.
"RE Diet: zucchini,carrot,rice,chicken,fish,eggs,spinach,cabbage,oakra,bell pepers something like that mom is really helping me with healthy food." — @DeNyThat sounds very healthy! I'm glad you have such a supportive and caring mother!
"i think it was B vitamins and ginger could that have been not letting me stabilize?" — @DeNySome people find B vitamins and other supplements to be activating.
"Thank you so much catina i just cant put it into words how much you have helped me technically being an online stranger hopefully we can support each other as much as possible. Healing energy to you." — @DeNyAww you're so welcome. I would take all your suffering away if I could. Just hold onto what Baylissa told you - that healing will happen for you. In the meantime, keep distracting and grounding yourself as much as you can. We're here whenever you need to reach out! ❤️
"I have these coin-shaped rashes and itchy spots on my skin, and I was wondering if this is a withdrawal symptom, too? or should i get it checked it by a derma its acttualy in a lot of places." — @DeNyHi DeNy...yes, skin issues are common in withdrawal. I've been having some strange skin issues myself. Of course, if it makes you feel better to get it checked out by a dermatologist then by all means do that. They'll probably want to give you something topical to "treat" it, but don't expect them to understand what's causing it if it is indeed due to withdrawal.
"My goal this year is just to feel stable every day I really don't want to keep getting worse." — @DeNyThat's a very important goal to have, and I hope we can help you reach it.
"Next month, I will be getting a health checkup, and I'm hoping everything goes well. If anyone has suggestions for specific things I should ask them to check, please let me know." — @DeNyRegarding blood work, I would make sure they check the following: Vitamin D level, electrolytes & basic metabolic panel, thyroid function, Iron (ferritin), Vitamin B12 & folate, magnesium, liver function, Inflammation markers (CRP), hormones, and CBC.
"Thank you for the suggestion ill for sure ask for those test" — @DeNyYou're very welcome my friend! I'll always be here to help and support you. ❤️
"Quick update on labs The completely normal tests are my kidneys, liver function and enzymes, my pancreas, and my full blood counts. My vitamins B12, B6, E, iron, and D are also fully normal and sufficient, along with my thyroid panel, electrolytes, celiac screen, and a clear u..." — @DeNyHello my friend, I'm glad you were able to get so many things checked and that most things were normal. What are your next steps for the fatty liver and gallstone? As far as your symptoms, I'm sorry you're still dealing with so many difficult things. I know this has really impacted your life and you want to heal so badly. Please hang in there as I know that one day things will improve for you. Are you still keeping detailed records on how you feel before and after taking your med doses? That can help us to figure out if something is causing an adverse reaction. Also, you may want to keep a record of how you're reacting to certain foods to see if there is a pattern. If it were me, I would definitely stay away from any more supplements or drugs since you have a history of extreme sensitivity. Why did you stop the lowFODMAP diet? So you switched from that diet to something else and it crashed you? The best advice I can give you to stabilize is to concentrate on simple and basic things: Getting 10-30 minutes of sunlight within 1/2 hour of waking to set your Circadian Rhythm, eating unprocessed whole foods, movement, rest, sleep, hydration. Stay away from caffeine, alcohol, sugar, nicotine. Find ways to distract yourself that are calming and relaxing. Show yourself some tender compassion. Here are some helpful links: https://taper.community/thread/fd801ae1-c066-4d86-ab23-1ee128668fd8 https://taper.community/thread/ec72f5e5-39fe-4f0e-b3c9-083b3e99d1c3 https://taper.community/thread/cbf196f2-7a92-460e-b78c-419887d02db2 https://taper.community/resources/blog/grounding-techniques-for-withdrawal-panic DeNy, please know that despite everything you're going through you are safe. You're not in any danger, even though it feels that way. Your nervous system is in complete chaos right now and just needs time to find its balance again. We're here whenever you need to reach out so you don't feel so alone. We care about your well-being very much, so keep hanging in there as best as you can. Tackle one day at a time. Hugs, Catina 💝
"I slipped up going from a loFODMAP diet to junk food" — @DeNyOh nooo! Yep, this can definitely mess things up. Food is probably the most powerful "medicine" there is.
"I will share my reaction log with you next week and restart the lowFODMAP diet using chronometer" — @DeNyThat sounds good. 👍
"should I return to the clean diet while I wait?" — @DeNyI think the sooner you can switch to your clean diet the better off you'll be.
"thank you for all your support truly preciate it" — @DeNyYou're very welcome! I'm sorry you're dealing with so much, but we're here whenever you need us! Big Hugs, Catina 😍
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