I feel like my soul is waking up from a long time asleep today. My reactions in conversation are getting quicker so I can stick up for myself and not be bulldozed by other people. Still getting head pressure and internal buzzes. I had a massive sugar craving this afternoon ,I've recently been avoiding sugar so I'll see how my sugar crash goes later. I'm feeling good though. My cough is improving it's higher up in my chest and releasing whatever crap is in there and I don't feel like I'm going to cough out blood. I'm so relieved I don't need quetiapine and that I'm coming off and what a relief to not be so sedated and to feel those side effects slip away ☺️
Horizon’s taper progress
Dose (mg)
Mood (/10)
Seroquel — 400— 22 years —down to 100 in 6 months, 100 is taking a lot of time to get used to so resting on 100 for as long as it takes. holding | without clinician
Yeah, it is actually fantastic to regain control over your life as your mind sharpens as you taper. Always take note of these successes cause that will allow you to distract your mind from the bad side effects. I am really happy for you.
Hi ☺️ I want you to know I really appreciate your support and advice, thank you 🫂 especially as you're coming off the same antipsychotic which may be a little different to the antidepressants. Knowing you're here is a massive help to me. I hope your day is going ok. I actually feel like I'm levelling out now and don't need to be so careful with diet etc. So I think it will be nice for me to just relax a bit before taking the next step. I might even stay here for the rest of the year. I'm not sure of the next step. I might get 50 and 25 , take one 50, one 25 and split another 25; which would take me to 87.5 mg 12.5% reduction, and see if that works. If not then I'll take the 100 and get some scales and taper to 90. I think if I could live on 25mg a day tablet after being on 400 or more for 22 years I would be over the moon 🥰
Knowing I don't have schizoaffective disorder and have been misdiagnosed makes me so happy. I could get angry about the past and all that but it's not worth it, especially with having to be mindful of thoughts and emotions
How are you?
Seroquel — 400— 22 years —down to 100 in 6 months, 100 is taking a lot of time to get used to so resting on 100 for as long as it takes. holding | without clinician
Same here. Diagnosed with schizoaffective disorder, I suffered a major burnout from overworking myself and binge drinking on weekends. It was frightening stuff I had a six week period where I only slept roughly 4-8 hours every 3 days. At the end of the sixth week I had a five day period with no sleep. I admitted myself voluntarily to the hospital where I got drugged up nicely and left with a misdiagnosis. They put me on Clonazepam and Seroquel. I cold turkeyed the clonazepam when I got home. And here I am 3 years later tapering the seroquel. I think though I am sleeping better than ever before so my only concern will be the insomnia by the time I am off. I am sober for 3 years now and got a day job. My life is set in a good rhytm so I really think I will make it and WILL get off this med. Rumination has always been my big problem so I set myself a training and diet regime I have no time to ponder on my issues too much. Its a kind of regimented life but it suits me. Life is strange it had to totally destroy me to be able to rebuild my life brick by brick. I really thought I am going to die 3 years ago. I actually travelled around to meet my family members one last time. When I went to my mum she sensed that I was preparing to die and she persuaded me to go to the hospital. Lost my job, my family was the only thing that kept me alive I had to live for my wife and 2 sons. Then got a job went back to college and I started a new career slowly. So here I am, still miserable sometimes but f... it. That is me in a nutshell
I wasn't eating, sleeping, socialising, stuck at home with responsibilities, getting into debt because I wasn't earning enough to pay the bills, not enough food in the cupboard, but smoking and addicted to nicotine. Heartbroken and burnt out. I started hearing voices, as you would under the circumstances
I needed food, sleep and company, activities to use my mind and keep my body fit. Then I was back to normal. But unfortunately they also gave me olanzapine, which gave the illusion that olanzapine was my saviour. This was later changed to quetiapine for health reasons.
The insomnia side of things is worrying me as well. Exercise definitely helps me get a good night's sleep.
I read a book recently called 'This book will change your mind about mental health ' by Nathan Filer. It's a short book and has helped me understand different types of delusions and also to reduce the importance of intrusive thoughts. I'm not sure if you like to read but if you do I would recommend it
It's great you got to the hospital for help but such a shame about the
misdiagnosis and wrong remedy
Amazing that you're 3 years sober, that's something I hope you feel seriously proud of, such a difficult thing to achieve
Sounds like you have a fantastic family, thank goodness your mum sensed you weren't feeling happy. I'm glad you have your wife and boys around you to motivate you and support you aswell.
I believe you'll successfully taper, if you can get off alcohol, stay off alcohol, find and keep a job, you keep a strict routine so you've got self discipline, which I greatly admire, you can do this, however long it takes, you've got good qualities.
It really is wonderful to meet you and speak with you, thank you for your time and help
I hope you enjoy the book , if you can get a copy, I found it in HMV
I'm off now, meds are kicking in and I need to sleep 💤
Seroquel — 400— 22 years —down to 100 in 6 months, 100 is taking a lot of time to get used to so resting on 100 for as long as it takes. holding | without clinician
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