R

LighthouseSeroquel · active

Hi there Hope, I haven't started my usual lengthy replies (maybe too lengthy at times) but just wanted to say thanks for getting back to Kayla. I was hoping you would too. I had to stop where I was writing back to her as I felt any more from me would just confuse her more, and besides I had been typing so much I was getting cross-eyed. And nice to have come across a fellow believer too by the way. I've found my faith a real help as you seem to have done too. But I'm wary of putting that on a thread yet, I don't want to scare off others when I don't know how they feel about religion and when they are so distressed at the moment. I really want to support them with my rather extensive and quite miserable experiences on these ghastly drugs. You have a good day then, Renee☺️

Seroquel — 69 mg — 13 years — actively tapering

anne noni moss1h ago

LighthousePaxil · holding

Super nice to see you feeling GREAT, @HopeNeverFails

atypical in presentation of side effects, super sensitive to small doses and general delayed responder. never took a psych med that didn't' make me sick immediately with infections and restless legs. have never been able to tolerate being on them, but have never had support to get off so I've been bouncing back and forth. i don't like capital letters. sorry.

Paxil — 1 mg — 2 yrs — holding until Oct. 7 doc appt.
Seroquel — 50 — planning taper |
trileptal -75 planning taper
prasozin 1 mg planning taper

started my psych med saga in 2001 and wish I never had. I had some difficulties with sleep and anxiety, but NOTHING like what was in store for me after trying every med out there. My last treatment center promised to "get me totally off" in 2022 but it was a lie. They just switched drugs and added more and more in a desperate attempt to help me "stabilize," so they could call me a "success story" once insurance stopped paying. I agree with those who state that this industry needs to change. AND I'm working on not being resentful about my suffering because it doesn't help anyone.

been on an off cocktails since 2001. Most recent mixture, prescribed in 2024: 20 mg Paxil, 150 Trileptal, 50 Seroquel, 2 mg prasozin, (for PTSD/nightmares.)

immediately went to 1 mg prasozin, and after 3 months cut to 10 mg paxil. No felt effects. Then went to 5 about 3 months later, (though I didnt' keep track so I'm rusty.) No felt effects. So, I've roughly been on 5 mg for a year and a half.

Side effects always force to to start tapering RIGHT AWAY.

I didn't start keeping track of my Paxil taper until this year. I went from 3mg to 1 in 10 months, using a liquid Maudsley-ish slow taper. Again, no felt effects until now.

October 2026...sleeping less and feeling more sedated during the day. Having trouble managing my social life without getting over-stimulated. Must set boundaries according to my body and not my heart.

Holding 1 mg paxil until blood work done and evaluated, and to see if build a social life that doesn't make me lose sleep. Sounds silly as I type it, but actually, nothing is "silly" on this ride! Everything is WILD!!!! LOL

Keeping all other meds the same. Sorry so long.

H

HopeNeverFails1h ago

LighthouseZyprexa · active

@renee j My faith is the reason for my confidence and I totally understand how you feel about not wanting to turn off 'non believers'. You can always share God's comforting messages and advice without speaking in Christian tongues, but ultimately and eventually, the gospel will need to be acknowledged and applauded. Keep in mind that we (the people suffering these psychological illnesses on this forum) are the lost sheep 🙂

Zyprexa started at 2.5mg in late April26 — 0.63mg at Nov 2026— actively tapering
Doxepin (Silenor / Sinequan) — started at 2mg in June26 - 0.3mg at Nov 2026— actively tapering

anne noni moss1h ago

LighthousePaxil · holding

"without speaking in Christian tongues" — @HopeNeverFails

or maybe we could speak in tongues so only the interpreter could understand???? LOLOL I think you both do a good job of being there for others. I started a prayer thread. No takers yet, so I pray in general. Today, I'm hurting so much and out of my own hope (and therefore leaning on His) that I put in a request for myself. I'm just tired of being in physical pain. Sometimes I feel like Elijah, running from Jezebel. "Let me DIE, Lord." Sometimes. This suffering is real suffering...this forum is a catalog. So glad you both are here.

atypical in presentation of side effects, super sensitive to small doses and general delayed responder. never took a psych med that didn't' make me sick immediately with infections and restless legs. have never been able to tolerate being on them, but have never had support to get off so I've been bouncing back and forth. i don't like capital letters. sorry.

Paxil — 1 mg — 2 yrs — holding until Oct. 7 doc appt.
Seroquel — 50 — planning taper |
trileptal -75 planning taper
prasozin 1 mg planning taper

started my psych med saga in 2001 and wish I never had. I had some difficulties with sleep and anxiety, but NOTHING like what was in store for me after trying every med out there. My last treatment center promised to "get me totally off" in 2022 but it was a lie. They just switched drugs and added more and more in a desperate attempt to help me "stabilize," so they could call me a "success story" once insurance stopped paying. I agree with those who state that this industry needs to change. AND I'm working on not being resentful about my suffering because it doesn't help anyone.

been on an off cocktails since 2001. Most recent mixture, prescribed in 2024: 20 mg Paxil, 150 Trileptal, 50 Seroquel, 2 mg prasozin, (for PTSD/nightmares.)

immediately went to 1 mg prasozin, and after 3 months cut to 10 mg paxil. No felt effects. Then went to 5 about 3 months later, (though I didnt' keep track so I'm rusty.) No felt effects. So, I've roughly been on 5 mg for a year and a half.

Side effects always force to to start tapering RIGHT AWAY.

I didn't start keeping track of my Paxil taper until this year. I went from 3mg to 1 in 10 months, using a liquid Maudsley-ish slow taper. Again, no felt effects until now.

October 2026...sleeping less and feeling more sedated during the day. Having trouble managing my social life without getting over-stimulated. Must set boundaries according to my body and not my heart.

Holding 1 mg paxil until blood work done and evaluated, and to see if build a social life that doesn't make me lose sleep. Sounds silly as I type it, but actually, nothing is "silly" on this ride! Everything is WILD!!!! LOL

Keeping all other meds the same. Sorry so long.

H

HopeNeverFails46m ago

LighthouseZyprexa · active

@anne noni moss, Thanks for the well wishes...I usually am in a pretty good mood despite sometimes ugly symptoms - because I am thankful for not being fearful anymore. Of all the terrible symptoms we face, continuous panic is death, and I am so grateful for our Abba, our Authority, to say "Do not fear!" Yeah, when I say speaking in Christian tongues, I mean using Churchy language to say stuff that could be said in a more common psychological tongue; not gabbeldy-gook blathering. I'll mix in a little Biblical terms with psychological insights, as that's what the Bible is at its deepest level - a Psychology Manual that describes the development and future of our psyches (souls/spirits). I also pray daily for a few of our most suffering forum members! 🙏

Zyprexa started at 2.5mg in late April26 — 0.63mg at Nov 2026— actively tapering
Doxepin (Silenor / Sinequan) — started at 2mg in June26 - 0.3mg at Nov 2026— actively tapering

anne noni moss43m ago

LighthousePaxil · holding

"I am thankful for not being fearful anymore." — @HopeNeverFails

Amen and Amen. We have a guarantee against fear, we do. That is worth celebrating. Today I lift my weary, pained arms, in praise for that!

atypical in presentation of side effects, super sensitive to small doses and general delayed responder. never took a psych med that didn't' make me sick immediately with infections and restless legs. have never been able to tolerate being on them, but have never had support to get off so I've been bouncing back and forth. i don't like capital letters. sorry.

Paxil — 1 mg — 2 yrs — holding until Oct. 7 doc appt.
Seroquel — 50 — planning taper |
trileptal -75 planning taper
prasozin 1 mg planning taper

started my psych med saga in 2001 and wish I never had. I had some difficulties with sleep and anxiety, but NOTHING like what was in store for me after trying every med out there. My last treatment center promised to "get me totally off" in 2022 but it was a lie. They just switched drugs and added more and more in a desperate attempt to help me "stabilize," so they could call me a "success story" once insurance stopped paying. I agree with those who state that this industry needs to change. AND I'm working on not being resentful about my suffering because it doesn't help anyone.

been on an off cocktails since 2001. Most recent mixture, prescribed in 2024: 20 mg Paxil, 150 Trileptal, 50 Seroquel, 2 mg prasozin, (for PTSD/nightmares.)

immediately went to 1 mg prasozin, and after 3 months cut to 10 mg paxil. No felt effects. Then went to 5 about 3 months later, (though I didnt' keep track so I'm rusty.) No felt effects. So, I've roughly been on 5 mg for a year and a half.

Side effects always force to to start tapering RIGHT AWAY.

I didn't start keeping track of my Paxil taper until this year. I went from 3mg to 1 in 10 months, using a liquid Maudsley-ish slow taper. Again, no felt effects until now.

October 2026...sleeping less and feeling more sedated during the day. Having trouble managing my social life without getting over-stimulated. Must set boundaries according to my body and not my heart.

Holding 1 mg paxil until blood work done and evaluated, and to see if build a social life that doesn't make me lose sleep. Sounds silly as I type it, but actually, nothing is "silly" on this ride! Everything is WILD!!!! LOL

Keeping all other meds the same. Sorry so long.

R

renee j43m ago

LighthouseSeroquel · active

Well, since I seem to be on a thread with only fellow-believers at this stage (which I would prefer right now to be honest) I feel comfortable about sharing a revelation I received shortly after starting out on this tapering thing. I have always wondered what the hell I have ever done to deserve all this suffering, including the horrendous upbringing by my drug-addled neglectful mother and my stressed out father. My 2 brothers and I have suffered major psychological damage as a result, and I was the only one to at least get the therapy I needed to survive to an extent. Felt a bit like Job but at least not covered in sores and my family didn't get wiped out like his, so that is something to be thankful for I guess. And quite often in the throes of horrible withdrawals from valium years ago, it did seem to appear that God had swanned off on His annual vacation somewhere celestial, and was, shall we say, "out of the office" But when I read some of the truly dreadful suffering our fellow taperers are going through right now, I can feel exactly what they are going through as I've been there myself, so I know, as others who haven't experienced this could never in a century know, what can help them, whether it's an encouraging word or a bit of practical advice. I feel I have found my purpose in life now, which I couldn't have had without all the suffering I've endured from the Year Dot. And rather than whinging away to God all the time about how awful things are, I'm amazed to now feel grateful to Him for the whole thing, I bet He's feeling relieved to get a break, wouldn't you say.

Seroquel — 69 mg — 13 years — actively tapering

anne noni moss5m ago

LighthousePaxil · holding

Beautiful, @renee j . Truly is. I have moments like that, but it's not as full blossomed as yours...gratitude, that is. My "comfort" is in a different vein...in the reality that all suffer in this life. Which doesn't make me more, or less, "spiritual", I don't think. (Other lacks might, though! ) I used to think I had to feel grateful for my suffering as you do, and I just never did. What gives me solace is that HE suffered as I do. And my purpose....hmmmmm. Well I'm re-thinking that as we write here. I feel down to hear some of your story. Mine is similar and hard to talk about. What super sad to me is that many many kids grow up like we did. So, I can understand why you feel a sense of purpose. You've been well-equipped to meet a world such as ours. Thanks for sharing this.

atypical in presentation of side effects, super sensitive to small doses and general delayed responder. never took a psych med that didn't' make me sick immediately with infections and restless legs. have never been able to tolerate being on them, but have never had support to get off so I've been bouncing back and forth. i don't like capital letters. sorry.

Paxil — 1 mg — 2 yrs — holding until Oct. 7 doc appt.
Seroquel — 50 — planning taper |
trileptal -75 planning taper
prasozin 1 mg planning taper

started my psych med saga in 2001 and wish I never had. I had some difficulties with sleep and anxiety, but NOTHING like what was in store for me after trying every med out there. My last treatment center promised to "get me totally off" in 2022 but it was a lie. They just switched drugs and added more and more in a desperate attempt to help me "stabilize," so they could call me a "success story" once insurance stopped paying. I agree with those who state that this industry needs to change. AND I'm working on not being resentful about my suffering because it doesn't help anyone.

been on an off cocktails since 2001. Most recent mixture, prescribed in 2024: 20 mg Paxil, 150 Trileptal, 50 Seroquel, 2 mg prasozin, (for PTSD/nightmares.)

immediately went to 1 mg prasozin, and after 3 months cut to 10 mg paxil. No felt effects. Then went to 5 about 3 months later, (though I didnt' keep track so I'm rusty.) No felt effects. So, I've roughly been on 5 mg for a year and a half.

Side effects always force to to start tapering RIGHT AWAY.

I didn't start keeping track of my Paxil taper until this year. I went from 3mg to 1 in 10 months, using a liquid Maudsley-ish slow taper. Again, no felt effects until now.

October 2026...sleeping less and feeling more sedated during the day. Having trouble managing my social life without getting over-stimulated. Must set boundaries according to my body and not my heart.

Holding 1 mg paxil until blood work done and evaluated, and to see if build a social life that doesn't make me lose sleep. Sounds silly as I type it, but actually, nothing is "silly" on this ride! Everything is WILD!!!! LOL

Keeping all other meds the same. Sorry so long.

31st Zyprexa Update - Feeling Great

HopeNeverFails’s taper progress

8 Replies

Join the conversation

Need a clinician who understands tapering?